Description
Général
- Healthcare utilization during transition to adult care in patients with spina bifida: A population-based longitudinal study in Ontario, Canada
- Health Care Transitions for Adolescents.
- Crossed perspectives on pediatrics to adult health care transition in Belgium
- Evaluating Transition Readiness: Is Self-Report Valid as the Gold Standard?
- Barriers to Effective Transitions of Care from Adolescent to Adult Medicine
- Readiness for transition to adult health care among US adolescents, 2016–2020.
- Transitioning from pediatric to adult healthcare: exploring the practices and experiences of care providers
- Provider Perspectives of Transitions of Care at a Tertiary Care Children's Hospital With a Hospitalist-Run Discharge Clinic
- The role and the composition of a liaison team to facilitate the transition of adolescents and young adults: an umbrella review
- But what do we mean by "health"? A critical perspective on the concept of health in the adolescent transition program of a Norwegian university hospital.
Expériences des patients
- The lived experience of adults and parents: Transitioning from paediatric to adult health care with oesophageal atresia and tracheo‐oesophageal fistula.
- The CDH patient perspective journey
- How clinicians can provide support during the transition to adulthood for young people with cerebral palsy: A parent and healthcare worker's perspective.
- Improving the transition from paediatric to adult healthcare: a scoping review on the recommendations of young adults with lived experience
- Transitioning between paediatric and adult healthcare services: a qualitative study of the experiences of young people with spinal cord injuries and parents/caregivers
- Longitudinal assessment of preparation for care transition among adolescents and young adults with rheumatologic disease: a single-center pilot study
- Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study
- The Inpatient Experience of Emerging Adults: Transitioning From Pediatric to Adult Care
- Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience
- Pediatric-Adult Care Transition: Perceptions of Adolescent and Young Adult Patients with Sickle Cell Disease and Their Healthcare Providers
Maladies chroniques
Fibrose kystique
- Transition from pediatric to adult care in chronic respiratory diseases: The cystic fibrosis model
- Transition from paediatric to adult care in cystic fibrosis
- Transitions of Care in Cystic Fibrosis
- Moving up: Healthcare transition experiences of adolescents and young adults with cystic fibrosis.
- Moving up: Healthcare transition experiences of adolescents and young adults with cystic fibrosis
- Transition to adult care in cystic fibrosis: The challenges and the structure.
Néphrologie
- Current approach to health care transition and integration into adult care for pediatric liver transplant recipients: A call for partnership
- Health Care Transition for Adolescents and Young Adults With Pediatric-Onset Liver Disease and Transplantation: A Position Paper by the North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition.
- The self-management and transition manual "ALL YOU NEED IS LOVE" for adolescents with chronic kidney disease
- The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality-A single center experience
- Pediatric to Adult Transition: Identifying Important Comorbidities and Considerations for Adult and Pediatric Nephrology Health Care Teams
- Health Care Transition in Adolescents and Young Adults With Chronic Kidney Disease: Focus on the Individual and Family Support Systems
- Transition of Chronic Pediatric Nephrological Patients to Adult Care Excluding Patients on Renal Replacement Therapy with Literature Review.
- Barriers to the Successful Health Care Transition of Patients with Kidney Disease: A Mixed-Methods Study on the Perspectives of Adult Nephrologists
- Transition of care from childhood and adolescence to adulthood in nephrology
- Various aspects of transition of care for adolescents with urological conditions
Transplantation
- Current approach to health care transition and integration into adult care for pediatric liver transplant recipients: A call for partnership
- Pilot longitudinal kidney transplant transition program promotes peer connections and transition readiness
- Insights on Transition of Care-Related Deaths of Young Adults Who Were Recipients of Pediatric Liver Transplantation.
- Education and Psychosocial Factors Predict Odds of Death After Transfer to Adult health Care in Pediatric Liver Transplant Patients.
- Education and Psychosocial Factors Predict Odds of Death After Transfer to Adult Healthcare in Pediatric Liver Transplant Patients
- Transitional care models in adolescent kidney transplant recipients - a systematic review
- Transition of young adult kidney transplant recipients
- Mitigating Risk Associated With the Transition From Pediatric to Adult Kidney Transplant Care: Strategies to Promote Success
- Initial attendance and retention in adult healthcare as criteria for transition success among organ transplant recipients
- Surveillance of End-Organ Damage in Fontan Patients Prior to Transition to Adult Care: Are We There Yet?
Gastro-entérologie
- Transition in chronic gastrointestinal diseases. From pediatric to adult care
- Optimizing transition from pediatric to adult care in short bowel syndrome and intestinal failure
- Systematic review of long term follow-up and transitional care in adolescents and adults with esophageal atresia - why is transitional care mandatory?
- Gastrointestinal Disorders in Adolescents and Young Adults: Preparing for a Smooth Transition to Adult-Centered Care
- Outcomes in Patients with Inflammatory Bowel Disease Transitioning from Pediatric to Adult Care: A Scoping Review.
- Transition Programmes for Young Patients with Inflammatory Bowel Disease Improve Adherence to Care.
- Pediatric to adult transfer of care in patients with pancreas disease: Recommendations for care and research opportunities
- A consensus statement on health-care transition for childhood-onset inflammatory bowel disease patients
- Defining Transition Success for Young Adults with Inflammatory Bowel Disease According to Patients, Parents and Health Care Providers
- Outcomes in Patients with Inflammatory Bowel Disease Transitioning from Pediatric to Adult Care: A Scoping Review
Épilepsie
- Transition to adult care in epilepsy: A systematic review.
- Transition to adult care in epilepsy: A systematic review
- Transition from pediatric to adult care among patients with epilepsy: Cross-sectional surveys of experts and patients in Korea
- Finding control over my epilepsy diagnosis
- Mediating effects of coping styles on the relationship between family resilience and self-care status of adolescents with epilepsy transitioning to adult healthcare: A cross-sectional study in China.
- Treatment outcome following the transition to adult epilepsy care in childhood-onset epilepsy.
- Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis
- Mediating effects of coping styles on the relationship between family resilience and self-care status of adolescents with epilepsy transitioning to adult healthcare: A cross-sectional study in China
- 13.3 The Impact of Psychiatric Comorbidities in Transition of Care for Adolescents with Epilepsy.
- Accompagner la transition vers l’âge adulte de l’adolescent épileptique
Maladies neuromusculaires
- Transitioning care for adolescents with spina bifida in the US: challenges for management
- Neuromuscular disorders and transition from pediatric to adult care in a multidisciplinary perspective: a narrative review of the scientific evidence and current debate
- Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care
- Transition program: Initial implementation with adults with neuromuscular conditions
- Role Attainment in Emerging Adulthood: Subjective Evaluation by Male Adolescents and Adults with Duchenne and Becker Muscular Dystrophy1
- Clinical profile and multidisciplinary needs of patients with neuromuscular disorders transitioning from paediatric to adult care
Oncologie
- Emotional Distress, Self-Management Skills, and Expectations Among Adolescents and Young Adult Childhood Cancer Survivors in Transition from Pediatric to Adult Care: A Brief Report
- Transition practices for survivors of childhood cancer: a report from the Children's Oncology Group
- Evaluation of a transition to survivorship program for pediatric, adolescent, and young adult cancer patients and caregivers
- Active Treatment to Survivorship Care: A Mixed-Methods Study Exploring Resource Needs and Preferences of Young Adult Cancer Survivors in Transition
- The process of becoming independent while balancing health management and social life in adolescent and young adult childhood cancer survivors
- Parental Perspectives on Health Care Transition in Adolescent and Young Adult Survivors of Pediatric Cancer
- Cancer knowledge and health-consciousness in childhood cancer survivors following transition into adult care-results from the ACCS project
- Long-term care for people treated for cancer during childhood and adolescence
- Transitional Care in Pediatric Brain Tumor Patients: A Systematic Literature Review.
- SickKids-led research uncovers potential immune-based therapy for difficult to treat childhood cancers
Enfants à besoins particuliers
- Transition care for adolescents and young adults with attention‐deficit hyperactivity disorder (ADHD): A descriptive summary of qualitative evidence.
- Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study.
- Stakeholders' Perspectives on Caregiver Outcomes for Health Care Transition for Adolescents and Young Adults with Special Health Care Needs: A Qualitative Study
- The transition of children with rare diseases from pediatric to adult care
- The development of a transition medical home utilizing the individualized transition plan (ITP) model for patients with complex diseases of childhood
- call for action: Recommendations to improve transition to adult care for youth with complex health care needs.
- A call for action: Recommendations to improve transition to adult care for youth with complex health care needs
- Caregivers' Perspectives on Transitioning Dental Care for Adolescents with Special Healthcare Needs-A Cross-Sectional Study
- Transition to adult dental care from a pediatric hospital dental home for patients with special health care needs.
- Caregiver experiences with transitions from pediatric to adult healthcare for children with complex care needs.
Polyhandicaps
- Health care transition for cerebral palsy with intellectual disabilities: A systematic review
- Carer perspectives of a transition to adult care model for adolescents with an intellectual disability and/or autism spectrum disorder with mental health comorbidities.
- Trends in hospital admissions during transition from paediatric to adult services for young people with learning disabilities or autism: Population-based cohort study
- Improved health care transition for young adults with developmental disabilities referred from designated transition clinics
- Carer Perspectives of a Transition to Adult Care Model for Adolescents with an Intellectual Disability and/or Autism Spectrum Disorder with Mental Health Comorbidities
- Disparities and outcomes of patients living with Down Syndrome undergoing healthcare transitions from pediatric to adult care: A scoping review
- As we celebrate National Developmental Disabilities Awareness Month, we recognize that many young adults with developmental disabilities face challenges as they transition to adulthood. These tools created with @ACPinternists can help! acponline.org/system/files/d… #DDawareness2022
- A new resource from @TheNatlAlliance and @withfoundation to help young adults with #iddd and their support persons plan for disasters and emergencies #adolescenthealth https://t.co/GSKiw2EB4C Quoted tweet from @TheNatlAlliance: NEW RESOURCE: the Emergency Preparedness Toolkit contains tip sheets for young adults w/ intellectual/developmental #disabilities, their support persons, and primary care teams to plan for disasters and emergencies. @withfoundation Available at gottransition.org/resource/emerg…
Santé mentale
- Gender Dysphoria in Pediatric and Transitional-Aged Youth Hospitalized for Suicidal Behaviors: A Cross-National Inpatient Study
- Pediatrician and Child Adolescent Psychiatrist Perspectives of Coordinated Care for Emerging Adults
- The importance of clinicians' and parents' awareness of suicidal behaviour in adolescents reaching the upper age limit of their mental health services in Europe
- Rate of mental disorders among 17 to 19 year olds increased in 2022, new report shows
- The transition of psychiatric ill adolescents from child and adolescent psychiatric care to adult psychiatric care
- Prioritizing core components of successful transitions from child to adult mental health care: a national Delphi survey with youth, caregivers, and health professionals.
- Transitioning adolescent mental health care services: The steps to care model.
- Association between transition readiness and mental health comorbidity in youth with chronic health conditions
- Transition from child and adolescent mental health care to adult services for young people with Attention-Deficit/Hyperactivity Disorder (ADHD) or Autism Spectrum Disorder (ASD) in Europe: Barriers and recommendations
- Adult and child and adolescent psychiatrists' experiences of transition in anorexia nervosa: a qualitative study
Soins infirmiers
Soutien à la transition des soins adultes
- Adaptation of an Adult Web Application for Type 1 Diabetes Self-management to Youth Using the Behavior Change Wheel to Tailor the Needs of Health Care Transition: Qualitative Interview Study
- The Role of Internal Medicine-Pediatric Programs and Transition Champions in Graduate Medical Trainee Health Care Transition Development
- Growing Up Can Be Hard to Do: Reimagining Structurally Supportive Pediatric-to-Adult Transitions of Care from a Rights-Based Perspective.
- Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review
- Benefits and Challenges of Pediatric-to-Adult Health Care Transition in Childhood-Onset Neurologic Conditions
- Empowering children and adolescents with sickle cell disease: a transition journey to adult care
- Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: A scoping review.
- Advancing pediatric primary care practice: Preparing youth for transition from pediatric to adult medical care, a quality improvement initiative
- Using technology to bridge the transition from pediatric to adult health care.
- Osteogenesis Imperfecta (OI) Transfer Summary Tool May be Used to Facilitate the Transfer of OI Patients from the Pediatric to Adult Healthcare Systems.
Lignes directrices et guides pratiques
- New Report Offers Recommendations for Strengthening the Primary Care Workforce for Young Adults with Complex Medical Needs
- Quality Measurement Gaps in Pediatric-To-Adult Health Care Transition in the United States: A Framework to Guide Development of New Measures
- Planning Transition of Care for Adolescents Affected by Congenital Heart Disease: The Irish National Pathway
- Health care transition from pediatric to adult care: an evidence-based guideline.
- Health care transition from pediatric to adult care: an evidence-based guideline
- Barriers to, and facilitators for, supporting looked-after children and young people in transition out of care to living with their adoptive or birth parents or special guardians, or into connected care: Looked-After Children and Young People: Evidence review M
- Interventions to support looked-after children and young people transitioning out of care to living with adoptive or birth parents or special guardians, or into connected care: Looked-After Children and Young People: Evidence review L
- Barriers to, and facilitators for, supporting and developing looked-after young people to transition out of care into independent living: Looked-After Children and Young People: Evidence review O
- Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH)
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